About me

My Never-Ending Story

Posted by on Feb 13, 2017 in About me | 42 comments

My Never-Ending Story

As most of you know by now, I have been in two years of medical hell. Recently there was good news and that was a rocket ship to hope. I still have to take nasty dangerous drugs for five more months, but the lung disease looks like it is ready to depart my body. Last week I went to the dermatologist, which I do every year since I grew up fair-skinned on the beaches of Southern California and like all my friends slathered on baby oil and baked my white skin on a striped towel on the sand as many weekends as I could manage. In the last two years, being distracted by emergency open heart...

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Miracle on Eldorado Drive!

Posted by on Dec 28, 2016 in About me, Gratitude | 85 comments

Hello all, A miracle happened today, I just do not know what else to call it. A year ago I was diagnosed with progressive lung disease. I have since had four surgeries, 79 tests and countless days in the hospital. It has been monumentally challenging and depressing, and I felt like I was not safe talking about it, since the year before I paid a great price for my honesty about my heart issue. So, I have been going to therapy and sharing with very few people. My prognosis has been uncertain, but every single time I had a cat scan the disease had grown. No meds, despite the horrendous side...

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Learning as Healing

Posted by on Nov 9, 2016 in About me, Art Adventures | 4 comments

Learning as Healing

Hello all of you that are still out there. It has been five months since I have posted which is the longest break I have taken since I started blogging in 2008. My health is still a challenge that takes a lot of time, but I am managing. Playing tennis, singing in a choir, making plans to do a hippy road trip in my van next summer. More about that adventure later. Today is profoundly sad for me. Recently I have been focused, or trying to focus, on a positive future, and for me, that does not include what happened yesterday. I am disheartened that our country is in the state it is in, I am...

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My New Medical Saga

Posted by on Jun 6, 2016 in About me, My heart journey | 44 comments

In March this year I had my one year checkup for my heart surgery. I was so looking forward to getting the stamp of approval from my cardiologist (I still have a  hard time saying that) and moving on from the drama of the medical world. That week I had many expensive tests which were all evaluated and sent to my doctor’s office. Then it was my turn to head in there and get the results. I am in the office, in my little assigned room waiting. The PA comes in, her name is Kim and she is brilliant. She starts out telling me how great my heart looks, how it could not be better and YAY! Then...

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Introducing “Sweet “16”

Posted by on Jan 4, 2016 in About me, Giveaway!, Gratitude | 25 comments

Introducing “Sweet “16”

I am going to give away stuff here on my blog on the 16th of the month for the whole year of 2016. Here’s Why: On March 3, 2015 I had open-heart surgery to repair an aneurysm I had no idea I had. The week before I stood in my kitchen and told my husband something was very wrong with me. I felt off, my “electrical” system felt jumpy and I had a deep cough. I made back-to-back appointments with my allergist and my primary care physician. Within an hour of the last appointment, I was Life-Flighted to a cardiac ICU. I spent five days there before the surgery and was restricted in my movements,...

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About My Heart

Posted by on Jul 14, 2015 in About me | 62 comments

About My Heart

It has been four and a half months since I went from having a cough to the Cardiac ICU in five hours and ended up having open-heart surgery for 8 hours for a 9cm aneurism I had no idea I had. I have spent the recovery time taking drugs and getting off of them, three days a week exercising to rebuild the 50% muscle tone that I lost because of this, and generally getting used to being a cardiac patient. The thing is, I am nowhere near used to it, and am not sure I ever will be. I went into the hospital a fairly fit 57 year old with ambition and a full life. I came out a 115 geriatric patient...

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